Sjogren Syndrome - Sindrome de Sjogren

November 3, 2011
About Sjögren’s Syndrome

Sjögren’s syndrome is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease.

Although the hallmark symptoms are dry eyes and dry mouth, Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system. Patients may also experience extreme fatigue and joint pain and have a higher risk of developing lymphoma.

With upwards of 4,000,000 Americans suffering from Sjögren’s syndrome, it is one of the most prevalent autoimmune disorders. Nine out of 10 patients are women.

About half of the time Sjögren’s syndrome occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as rheumatoid arthritis, lupus, or scleroderma. When Sjögren’s occurs alone, it is referred to as “Primary Sjögren’s.” When it occurs with another connective tissue disease, it is referred to as “Secondary Sjögren’s.” 

All instances of Sjögren’s syndrome are systemic, affecting the entire body. Symptoms may remain steady, worsen, or, uncommonly, go into remission. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatment are important — they may prevent serious complications and greatly improve a patient’s quality of life.

Since symptoms of Sjögren’s syndrome mimic other conditions and diseases, Sjögren’s can often be overlooked or misdiagnosed. On average, it takes nearly seven years to receive a diagnosis of Sjögren’s syndrome. Patients need to remember to be pro-active in talking with their physicians and dentists about their symptoms and potential treatment options.

Since the disease was first identified in 1933 by Dr. Henrik Sjögren, it has been proven to affect virtually every racial and ethnic group. General awareness about Sjögren’s syndrome is still lacking and increased professional awareness is needed to help expedite new diagnoses and treatment options.

The text above is from http://www.sjogrens.org/home/about-sjogrens-syndrome

 

Cervical Dystonia - Distonia Cervical

November 3, 2011

Quick Facts about

Cervical Dystonia (Spasmodic Torticollis)


  • Cervical dystonia is also known as spasmodic torticollis.

  • Cervical dystonia is a focal dystonia that affects the neck and sometimes the shoulders.

  • Symptoms include involuntary contracting of the neck muscles, causing abnormal movements and awkward posture of the head and neck.

  • The movements may be sustained (“tonic”), jerky (“clonic”), or a combination.

  • Cervical dystonia may result in considerable pain and discomfort.

  • Treatments may...

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Health - Good news for lupus victims

November 1, 2011

Lupus Research Institute Announces Groundbreaking Global Research Initiative

$8 Million Grant Launches Search for Fundamental Causes Driving to a Cure

NEW YORK, NY – October 17, 2011 – The Lupus Research Institute (LRI) launched a major international initiative aimed at attracting the highest level scientists to conduct pioneering research to discover the fundamental root causes of lupus, explore the potential for a cure, and transform the field of lupus research. LRI president Margaret Dow...


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Making the World a Better Place - Fazendo do Mundo um Lugar Melhor


naza ““Donating part of my art to help raise awareness and funds for non-profit organizations that make medical research is my way of making the difference”, says Naza, Brazilian American Visual Artist. She has been involved with several organizations in their efforts to make the World a better place. She organized fund raisers for the Cystic Fibrosis Foundation, The Haven, and The Miami Project to Cure Paralysis. In her attempts to help animals, children, health research, and human rights, she has donated her art to countless charity events in South Florida, Brazil, Washington D.C., North Carolina, and New York. Now, the painter has kindly offered the domain naza.org to be used as a tool to help promote non-profit organizations of several causes, including children wellbeing, animal rights, human rights, the environment, health research, and the arts. ____________________________________ “Doar parte do meu trabalho para ajudar a angariar fundos para pesquizas científicas da area de saúde é minha forma de ajudar a fazer a diferença”, diz Naza, artista plástica brasileira Americana. Ela tem estado envolvida com várias Ongs em seus esforços para fazer do mundo um lugar melhor. Naza organizou vários eventos para angariar fundos para Cystic Fibrosis Foundation, The Haven e The Miami Project to Cure Paralysis. Em seu esforço para ajudar animais, crianças, pesquizas científicas e os direitos humanos,ela já doou sua arte para um sem número de Ongs da Flórida, do Brasil, de Washington, D.C, North Carolina, e Nova York. Agora, esta pintora pôs à disposição das pessoas o domínio naza.org para que seja usado como uma ferramenta para promover várias causas, inclusive o bem estar e a segurança das crianças, os direitos dos animais, os direitos humanos, o meio ambiente, as pesquizas da área de saúde e as artes.

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